Patient Support and Resources

Articles and Other Publications

Cancer Resources

American Association for Cancer Research (AACR)
www.aacr.org

The mission of the AACR is to prevent and cure cancer through research, education, and communication. Through its programs and services, the AACR fosters research in cancer and related biomedical science; accelerates the dissemination of new research findings among scientists and others dedicated to the conquest of cancer; promotes science education and training; and advances the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world. 866.423.3965

 

American Cancer Online Resources (ACOR)
www.acor.org

ACOR is a unique collection of online communities designed to provide timely and accurate information in a supportive environment.

 

American Cancer Society (ACS) 
www.cancer.org

A nationwide, community-based, voluntary health organization dedicated to fighting cancer through research, education, patient service, advocacy, and rehabilitation. This site provides in-depth information on every major cancer type, access to recent news articles, and additional on- and off-line resources. The site also includes a directory of medical resources, links to other cancer-related sites, resources for media representatives, and information on the Society’s research grants program, advocacy efforts, and special events. 800.ACS.2345

 

American Society of Clinical Oncologists (ASCO)
www.cancer.net

The American Society of Clinical Oncologists  is the world’s leading professional organization representing physicians who treat people with cancer.This web site provides accurate, reliable and doctor approved cancer information from ASCO.

 

Cancer Research Institute
www.cancerresearch.org

The Cancer Research Institute is a foundation dedicated to the development and application of immunological approaches to cancer and allied diseases. The site has both professional and public information services that may be of help in regard to melanoma. 800.992.2623

 

CancerQuest
www.cancerquest.org

This Web site, sponsored by Emory University, was designed to empower cancer patients, cancer survivors, students, health workers, and others with a better understanding of the disease process and current approaches to cancer detection, diagnosis, and treatment. No assumptions are made about previous knowledge of cancer or biology.

 

National Cancer Institute (NCI)
www.cancer.gov

The National Cancer Institute site is a comprehensive consumer and professional resource on the cause, diagnosis, prevention, and treatment of cancer; rehabilitation from cancer; and the continuing care of cancer patients and their families. In addition, the National Cancer Institute provides information about grant and funding opportunities, plans for cancer research, and training programs for cancer investigators. 800.4.CANCER

 

National Comprehensive Cancer Network (NCCN)
www.nccn.org

The National Comprehensive Cancer Network is an alliance of 21 of the world’s leading cancer centers, working together to develop treatment guidelines for most cancers and dedicated to research that improves the quality, effectiveness, and efficiency of cancer care. NCCN offers a number of programs to help you and your family make informed decisions about your health. 888.909.NCCN

 

National Institutes of Health (NIH)
http://www.nih.gov

The National Institutes of Health is one of the world’s foremost medical research centers and the Federal focal point for medical research in the United States. This site provides extensive consumer and professional information on a wide range of diseases and conditions, news and events, scientific resources, and grant and funding opportunities. 301.496.4000

Education

National Coalition for Cancer Survivorship (NCCS)
www.canceradvocacy.org

The NCCS is a nonprofit national advocacy organization that is a nationwide network of independent organizations and individuals working in the areas of cancer support, education, and advocacy. 877.NCCS.YES

 

OncoLink.org
www.oncolink.org

OncoLink is a comprehensive cancer site maintained by University of Pennsylvania cancer specialists. The site includes information about specific types of cancer, updates on cancer treatments, and news about research advances.

Emotional Support

Cancer Hope Network
www.cancerhopenetwork.org

Provides free, confidential, one-on-one support to people with cancer and their families throughout the US. 877.HOPE.NET

 

Cancer Support Community
www.cancersupportcommunity.org

An international nonprofit organization dedicated to providing free support, education, and hope to people with cancer and their loved ones. 202.659.9709

 

CancerCare
www.cancercare.org

CancerCare is a national nonprofit organization whose mission is to provide free professional help to people with all cancers and their families through counseling, education, information and referral, bereavement services, and direct financial assistance. 800.813.HOPE

 

Imerman Angels
www.imermanangels.org

Imerman Angels matches and individually pairs a person touched by cancer (a cancer fighter or survivor) with someone who has fought and survived the same type of cancer (a Mentor Angel).  312-274-5529

 

Lance Armstrong Foundation (LAF)
www.livestrong.org

A nonprofit organization founded in 1997 by cancer survivor and champion cyclist, Lance Armstrong. The LAF inspires and empowers people with cancer. 512.236.8820

 

MyLifeLine.org
www.mylifeline.org

MyLifeLine.org is a 501(c)(3) nonprofit organization that encourages cancer patients and caregivers to create free, customized websites. Its mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.

 

Pregnant With Cancer Network
www.pregnantwithcancer.org

The Pregnant With Cancer Network is a national nonprofit organization dedicated to providing women diagnosed with cancer while pregnant with information, support, and hope through phone and e-mail conversation. 800.743.4471

 

R.A. Bloch Cancer Foundation
www.blochcancer.org

The Bloch Cancer Foundation matches callers with someone who has survived the same type of cancer, by phone, through their national network of nearly 500 cancer survivors. 800-433-0464

 

Treatment Diaries
www.treatmentdiaries.com/condition/melanoma.aspx

Treatment Diaries is a social network for people that are living with or caring for someone with a chronic illness.

Financial and Legal Assistance

American Cancer Society
www.cancer.org

The ACS is a nationwide voluntary health organization dedicated to eliminating cancer. Among its many activities, the ACS assists individuals in dealing with financial and insurance issues. Individuals should speak with an ACS representative to learn about financial assistance programs in their local area. 800-ACS-2345

 

Andre Sobel River of Life Foundation
http://andreriveroflife.org

Social workers at affiliated children’s hospitals send Andre Sobel River of Life Foundation requests on behalf of single parent families in financial crisis. The requests range from essentials such as food, transportation, utilities, and medications not covered by insurance funds to protect family from eviction or foreclosure.

 

Brenda Mehling Cancer Fund
www.bmcf.net

The Brenda Mehling Cancer Fund (BMCF) supports patients ages 18-40 as they undergo cancer treatment. It provides services to meet daily needs that are not covered by insurance. Typical grants cover $500 worth of medical co-payments, rent and mortgage, transportation, car insurance, repairs, and groceries. 661-313-5570

 

Cancer Legal Resource Center
www.disabilityrightslegalcenter.org

The Cancer Legal Resource Center (CLRC) is a national, joint program of the Disability Rights Legal Center and Loyola Law School of Los Angeles. The CLRC provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, health care professionals, employers, and others coping with cancer.

 

CancerCare
www.cancercare.org

CancerCare a national nonprofit organization whose mission is to provide free professional help to people with all cancers and their families through counseling, education, information and referral, bereavement services, and direct financial assistance. 800.813.HOPE

 

Centers for Medicare and Medicaid Services (CMMS)
www.cms.hhs.gov/home/medicaid.asp

Administers the Medicare program and works in partnership with the states to administer Medicaid, the State Children’s Health Insurance Program (SCHIP), and health insurance portability standards. CMMS works closely with the Social Security Administration (SSA) to provide information about Medicare to beneficiaries applying for, or currently receiving, retirement or disability benefits at local SSA district offices.

 

Chronic Disease Fund
www.cdfund.org

Chronic Disease Fund is a charitable organization helping patients with chronic disease, cancers or life-altering conditions obtain the expensive medications they need. 877-968-7233

 

Cleaning For A Reason
www.cleaningforareason.org

Cleaning For A Reason is a nonprofit serving the entire United States and Canada which partners with maid services to offer professional house cleanings to help women undergoing treatment for cancer. 877-337-3348

 

Family Reach Foundation
www.familyreach.org

The Family Reach Foundation serve children cancer or an adult with cancer who has a child. The focus is to help eligible families pay for a variety of significant expenses that mount during the patient’s treatment.

 

HealthWell Foundation
www.healthwellfoundation.org

The HealthWell Foundation is a non-profit that is committed to addressing the needs of individuals with insurance who cannot afford their copayments, coinsurance, and premiums for important medical treatments. 800-675-8416

 

LawHelp
www.lawhelp.org

LawHelp helps people of low and moderate incomes find free legal aid programs in their communities, answers to questions about their legal rights and forms to help them with their legal problems.

 

National Cancer Institute
www.cancer.gov/clinicaltrials/learning/laws-about-clinical-trial-costs

The Web site at NCI provides information about which states require health plans to cover patient care costs for clinical trials.

 

National Cancer Coalition
www.nationalcancercoalition.org

NCC provides individuals with cancer or other serious illness or disease with the required medical goods and/or financial assistance that they require to be able to complete their treatments or have an improved quality of life. 919-821-2182

 

National Cancer Legal Services Network
www.nclsn.org

The NCLSN promotes increased availability of free legal services programs so that people affected by cancer may focus on medical care and their quality of life. Legal services programs assist with insurance disputes, public benefits, housing, employment issues, future care and custody planning, immigration, and advance directives.

 

National Health Law Program
www.healthlaw.org

The National Health Law Program protects and advances the health rights of low income and underserved individuals. The oldest non-profit of its kind, NHeLP advocates, educates and litigates at the federal and state level.

 

NeedyMeds.com
www.needymeds.com

NeedyMeds is a nonprofit with the mission of helping people who cannot afford medicine or health care costs. The information at NeedyMeds is available anonymously and free of charge.

 

Patient Advocate Foundation
www.patientadvocate.org

A national nonprofit organization that serves as an active liaison between patients and their insurers, employers, and/or creditors to resolve insurance, job discrimination, and/or debt crisis matters related to their diagnosis. It seeks to safeguard patients through effective mediation, assuring access to care, maintenance of employment, and preservation of financial stability. 800.532.5274

 

Partnership for Prescription Assistance
www.pparx.org

The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations, and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them. 888.4PPA.NOW

 

RxHope
www.rxhope.com

RxHope acts as your advocate in making the patient assistance program journey easier and faster by supplying vital information and help. 1-877-267-0517

 

Social Security
www.ssa.gov

Provides a monthly income for eligible elderly and disabled individuals. Information on eligibility, coverage, and how to apply for benefits is available from the Social Security Administration.

 

The SamFund
www.thesamfund.org

The SAMFund is the only nonprofit organization in the country designed to help young adults recover from the devastating financial impact of cancer treatment. 866-439-9365

 

United Way
www.liveunited.org

Local United Ways create long-lasting community change by addressing the underlying causes of the most significant local issues. Common focus areas include helping children and youth achieve their potential, promoting financial stability and independence, and improving people’s health.

Hospice

Hospice Education Institute
www.hospiceworld.org

The Institute is an independent, not-for-profit organization, serving members of the public and health care professionals with information and education about the many facets of caring for the dying and the bereaved. 800.331.1620

 

Hospice Foundation of America
www.hospicefoundation.org

An organization that exists to help those who cope personally or professionally with terminal illness, death, and the process of grief and bereavement. 800.854.3402

 

HospiceNet
www.hospicenet.org

For patients and caregivers facing a life-threatening disease, HospiceNet, among other things, answers frequently asked questions about hospice, discusses issues surrounded pain and pain management, and provides steps on how to be a supportive caregiver.

 

The National Hospice and Palliative Care Organization (NHPCO)
www.ngpco.org

NHPCO is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. (Spanish/English) 800.658.8898

Lodging

Alex’s Lemonade Stand Foundation
www.alexslemonade.org

The Alex’s Lemonade Stand Travel Fund offers assistance to families who face the need to travel for childhood cancer treatment at select medical institutions across the US. Transportation, lodging, and meal accommodations are available to eligible families who meet our criteria. 866-333-1213

 

Brenda Mehling Cancer Fund
www.bmcf.net

The Brenda Mehling Cancer Fund (BMCF) supports patients ages 18-40 as they undergo cancer treatment. It provides services to meet daily needs that are not covered by insurance. Typical grants cover $500 worth of medical co-payments, rent and mortgage, transportation, car insurance, repairs, and groceries. 661-313-5570

 

Fisher House
www.fisherhouse.org

A Fisher House is “a home away from home” for military families to be close to a loved one receiving medical care at major military and VA medical centers. The homes are normally located within walking distance of the treatment facility or have transportation available. 888-294-8560 or 301-294-8560

 

Healthcare Hospitality Network, Inc.
www.nahhh.org 

HHN is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities. 800-542-9730

 

Hope Lodge
www.cancer.org/docroot/subsite/hopelodge/index.asp

An American Cancer Society Hope Lodge offers cancer patients and their families a free, temporary place to stay when their best hope for effective treatment may be in another city. It provides a nurturing, homelike environment where patients and caregivers can retreat to private rooms or connect with others who are going through many of the same experiences. 800.ACS.2345

 

Hospitality Homes
www.hosp.org

Hospitality Homes provides free short-term housing in volunteer host homes and donated apartments for families and friends of patients seeking care at Boston-area medical organizations. 888-595-4678

 

Joe’s House
www.joeshouse.org

Joe’s House is a nonprofit organization providing an online nation-wide list of places to stay to assist cancer patients and their families find lodging near treatment centers. 877-563-7468

 

Miracle House
www.miraclehouse.org

Miracle House, New York City’s “Hope Away From Home,” provides temporary housing and support services for caregivers and patients coming to New York City for critical medical treatment. 212.989.7790, ext.13

 

Ronald McDonald House
www.rmhc.com

Ronald McDonald House programs offer rooms for families of pediatric (from birth to 18 or 21, depending on the House) patients who are being treated at nearby hospitals and medical facilities, and their families are eligible.

Management of Pain and Other Side Effects

American Pain Foundation
www.painfoundation.org

Founded in 1997, it is an independent nonprofit organization serving people with pain through information, advocacy, and support. Its mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management. 888.615.PAIN (7246)

 

Cancer-Pain.Org
www.cancer-pain.org

An ACOR site that was created to help cancer patients receive the pain treatment they deserve. It contains information about cancer pain, its causes, and available treatments, as well as links to online groups.

 

CancerCare
www.cancercare.org

CancerCare is a national nonprofit organization whose mission is to provide free professional help to people with all cancers and their families through counseling, education, information and referral, bereavement services, and direct financial assistance. 800.813.HOPE

 

CancerSymptoms.org
www.cancersymptoms.org

This Web site, sponsored by the Oncology Nursing Society (ONS), is designed for patients and caregivers to provide information on learning about and managing each of 10 cancer treatment–related symptoms that patients undergoing treatment for a cancer diagnosis commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.

Melanoma Specific

American Cancer Society (ACS)
www.cancer.org

A nationwide, community-based, voluntary health organization dedicated to fighting cancer through research, education, patient service, advocacy, and rehabilitation. This site provides in-depth information on every major cancer type, access to recent news articles, and additional on- and off-line resources. The site also includes a directory of medical resources, links to other cancer-related sites, resources for media representatives, and information on the Society’s research grants program, advocacy efforts, and special events. 800.ACS.2345

 

Cancer.Net
www.cancer.net

This patient information Web site sponsored by the American Society of Clinical Oncology (ASCO) is designed to help patients and families make informed health care decisions. The site provides information on more than 120 types of cancer and cancer-related syndromes, clinical trials, coping, side effects, a “Find an Oncologist” database, message boards, patient support organizations, and more. (English and Spanish)

 

CancerQuest
www.cancerquest.org

This Web site, sponsored by Emory University, was designed to empower cancer patients, cancer survivors, students, health workers, and others with a better understanding of the disease process and current approaches to cancer detection, diagnosis, and treatment. No assumptions are made about previous knowledge of cancer or biology.

 

National Cancer Institute (NCI)
www.cancer.gov

The National Cancer Institute site is a comprehensive consumer and professional resource on the cause, diagnosis, prevention, and treatment of cancer; rehabilitation from cancer; and the continuing care of cancer patients and their families. In addition, the National Cancer Institute provides information about grant and funding opportunities, plans for cancer research, and training programs for cancer investigators. 800.4.CANCER

 

Save Your Skin Foundation
www.saveyourskin.ca

A community of volunteers determined to eliminate melanoma through research and education, and dedicated to those touched by it.

Nutrition

American Cancer Society (ACS)
www.cancer.org

Whether someone needs help dealing with side effects or simply wants to make sure you maintain your health, the ACS’s resources can help.

 

American Institute for Cancer Research
http://www.aicr.org

A cancer charity that fosters research on diet and cancer prevention, interprets the evidence, and educates the public about the results. 800.843.8114

 

The Cancer Project
www.cancerproject.org

The Cancer Project is America’s leading organization working for cancer prevention and survival through a better understanding of cancer causes, particularly nutrition. 202.244.5038

 

Cancer Support Community
www.cancersupportcommunity.org

An international nonprofit organization dedicated to providing free support, education, and hope to people with cancer and their loved ones. There are also resources and information on foods and general nutrition information that will be of value before, during, and after treatment. Recipes for savory dishes packed with nutrients are also available here. 202.659.9709

Clinical Trials

Professional Organizations/ Medical Professional Services

American Academy of Dermatology (AAD)
www.aad.org

The AAD is a professional organization that provides consumer and professional information on a wide variety of skin conditions and diseases including melanoma. 847.330.0230

 

Association of Community Cancer Centers (ACCC)
www.accc-cancer.org

ACCC is an education and advocacy organization for the members of the cancer team. It promotes an entire continuum of quality cancer care for its patients and the community. For more than 30 years, ACCC has helped oncology professionals adapt to the complex challenges of program management, reimbursement restraints, hospital consolidation and mergers, and legislation and regulations. 301.984.9496

 

Association of Oncology Social Work (AOSW)
www.aosw.org

AOSW is an international nonprofit organization dedicated to the enhancement of psychosocial services to people with cancer and their families. 215.599.6093

 

American Society of Clinical Oncology (ASCO)
www.asco.org

ASCO is a nonprofit organization whose Web site is a cancer resource for oncology professionals and consumers, providing the latest news in cancer research, a searchable listing of ASCO oncologists, and professional resources for ASCO members. 703.299.015

 

Oncology Nursing Society (ONS)
www.ons.org

A national organization of registered nurses and other health care professionals dedicated to excellence in patient care, teaching, research, administration, and education in the field of oncology. The site provides cancer information for ONS members, other health care providers, as well as the general public. 866.257.4ONS

Transportation

Air Care Alliance
www.aircareall.org

A nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, environmental support, and other missions of public service.

 

Air Charity Network (ACN)
aircharitynetwork.org

ACN provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. 877.621.7177

 

Air Flight Central (AFC)
www.angelflightcentral.org

Angel Flight Central (AFC) is a volunteer non-profit 501(c)(3) organization dedicated to removing the burdens of arranging long-distance transportation at times of personal and community crisis.

 

Alex’s Lemonade Stand Foundation
www.alexslemonade.org

The Alex’s Lemonade Stand Travel Fund offers assistance to families who face the need to travel for childhood cancer treatment at select medical institutions across the US. Transportation, lodging, and meal accommodations are available to eligible families who meet our criteria. 866-333-1213

 

American Cancer Society
www.cancer.org

The ACS is a nationwide voluntary health organization dedicated to eliminating cancer.

The Road to Recovery program provides transportation to and from treatment for people who have cancer who do not have a ride or are unable to drive themselves. Volunteer drivers donate their time and the use of their cars so that patients can receive the life-saving treatments they need. The ACS also makes limited financial assistance available in the form of gas cards for patients to help defray the cost of transportation to and from cancer related medical appointments. 800-ACS-2345

 

Brenda Mehling Cancer Fund
www.bmcf.net

The Brenda Mehling Cancer Fund (BMCF) supports patients ages 18-40 as they undergo cancer treatment. It provides services to meet daily needs that are not covered by insurance. Typical grants cover $500 worth of medical co-payments, rent and mortgage, transportation, car insurance, repairs, and groceries. 661-313-5570

 

CancerCare
www.cancercare.org

CancerCare a national nonprofit organization whose mission is to provide free professional help to people with all cancers and their families through counseling, education, information and referral, bereavement services, and direct financial assistance. 800.813.HOPE

 

Corporate Angel Network
www.corpangelnetwork.org

Provides free air transportation for patients with cancer traveling to and from recognized cancer treatment centers in the United States without regard to their financial resources. 914.328.1313 Toll free: 866.328.1313

 

Family Reach Foundation
www.familyreach.org

The Family Reach Foundation serve children cancer or an adult with cancer who has a child. The focus is to help eligible families pay for a variety of significant expenses that mount during the patient’s treatment.

 

Free Gas USA, Inc.
www.freegasusa.org

Free Gas USA, Inc. is a nonprofit gasoline grant assistance provider to poverty-stricken individuals in need of gasoline to drive to medical appointments.

 

Lifeline Pilots
www.lifelinepilots.org

LifeLine Pilots is a transportation bridge for thousands of families in need, whether the passengers are seeking the best medical treatment or have a compassionate need. 800-822-7972

 

National Patient Travel Center (NPTC)
www.patienttravel.org

The NPTC exists to facilitate patient access to appropriate charitable medical air transportation resources in the United States. The NPTC also develops, administers, and consolidates airline patient ticket programs and operates various Special-Lift and Child-Lift programs on behalf of special disease organizations and/or clinical research centers in the United States. 800.296.1217

Young Adults With Cancer

Planet Cancer
myplanet.planetcancer.org

Planet Cancer is a community of young adults with cancer. It’s a place to share insights, explore our fears, laugh, or even give the finger to cancer with others who just plain get it.

 

Stupid Cancer
www.stupidcancer.com

Its mission is to end isolation and improve quality of life for young adults affected by cancer through serving as a global community, educating providers, advocating on behalf of young adult survivors, and gaining a better understanding of the needs of young adult survivors.

 

The Ulman Cancer Fund for Young Adults
www.ulmanfund.org

The Ulman Cancer Fund for Young Adults provides support programs, education, and resources, free of charge, to benefit young adults and their families and friends who are affected by cancer, and to promote awareness and prevention of cancer. 888.393.FUND (3863)

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